Linked-evidence synthesis evaluating interventions aiming to improve the mental health of children with long-term conditions: Involvement of young people




Poster session 1 Wednesday: Evidence production and synthesis


Wednesday 13 September 2017 - 12:30 to 14:00


All authors in correct order:

Shaw L1, Moore D1, Nunns M1, Rogers M1, Garside R1, Ukoumunne O1, University College London R1, Heyman I2, Ford T1, Dickens C1, Walker E2, Titman P2, Anderson R1, Viner R3, Bennett S3, Logan S1, Thompson Coon J1
1 University of Exeter, United Kingdom
2 Great Ormond Street Hospital for Children NHS Trust, United Kingdom
3 University College London, United Kingdom
Presenting author and contact person

Presenting author:

Liz Shaw

Contact person:

Abstract text
Background: We recently completed a project which involved two linked systematic reviews and an overarching synthesis evaluating the effectiveness and experiences of mental-health interventions for children and young people (CYP) with long-term physical conditions. We involved CYP throughout the project from planning to dissemination of the findings.

Aim: To describe the process of involvement of CYP within a linked-evidence synthesis project, share the outcomes and reflect on lessons learned.

Methods: CYP with lived experience of long-term conditions (LTC) and mental-health difficulties were invited to attend a series of 4 events held at Great Ormond Street Hospital in London. Each event was structured around a series of activities to facilitate discussion. Activities were devised to aid reviewers’ understanding of emerging findings and influence the developing project. CYP also provided feedback on the definition of key terms and methods of dissemination. Parents attended the final 2 events to discuss issues relevant to families. CYP and their parents helped prepare dissemination materials including plain-language summaries and a podcast. All involvement was co-ordinated by a dedicated member of the research team.

Impact: Insights from CYP were crucial to the synthesis at all stages. CYP gave feedback on outcomes identified within the review of effectiveness and provided ideas which contributed towards the development of themes or categories in the review of experiences and in the overarching synthesis. Their knowledge of the project enabled them to develop accessible materials summarising the findings, which were disseminated to children, families and a range of organisations. CYP enjoyed taking part in the consultation because it gave them the chance to meet their peers, share experiences of living with an LTC and contribute towards disseminating findings relevant to their own lives.

Conclusions: Involvement of CYP throughout the project allowed us to reflect the experiences of those with the most insight, enhanced the applicability of the findings and enabled the CYP to connect with others in similar situations.